Camp Blog

Elsie’s Big Stride

19th May 2018

We are proud to be supporting as one of our featured charities the touching work of Elsie’s Big Stride.

Elsie is a 3 year old from Devon, United Kingdom. She has Spastic Diplegic Cerebral Palsy and her charity wants to help her to stay as mobile as possible and to reach her real potential through greater independence.

We were touched by the story of Elsie, born 10 weeks prematurely and, at 11 months diagnosed with Spastic Diplegic Cerebral Palsy. 

For Elsie this means affected tone in her legs which requires her to have daily physiotherapy, specialist equipment and a range of professionals supporting her.

In October 2017 her Neurosurgeon recommended that Elsie would benefit from a procedure called Selective Dorsal Rhizotomy (SDR).  Without this and the intense rehabilitation package, the prediction is that Elsie will require a number of invasive surgeries over her lifetime and will experience reducing independence. Unfortunately this surgery is not available via the National Health Service in the UK where Elsie lives.

The same condition and the same surgery was at the heart of our charity efforts in 2011, for another young lady, Suranna (4) who has hugely benefited from the treatment she was able to receive as result of a concerted fund raising effort. We have been delighted to follow Susanna’s progress and to see how she has blossomed into a capable and active 11 year old.

The hope for Elsie is to access this life changing surgery and to provide the specialist equipment, further therapy and home adaptions she needs to allow her to reach her full potential.

Elsie’s determination is inspiring and we are proud to help her on her incredible journey to grasp the opportunity she deserves.

WE ORGANISE AMAZING Winter CAMPS TOO...